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Rare Autoinflammatory Conditions Community - UK

raccuk.com

Join the fight against inflammation

Mission Statement:

Our mission is to support patients, families and carers affected by autoinflammatory conditions in the UK. We provide consultations, action plans, and emotional support to help them cope and thrive. We raise awareness and education about autoinflammatory conditions among the public and health professionals. We influence and participate in policy and research to improve the diagnosis and treatment of these rare disorders. We are guided by our core values of lived experience, policy influence, and awareness raising. We measure our impact by the number and quality of our consultations, the feedback from our families, the policies we contribute to, the stakeholders we engage with, and the hospitals we reach.

Vision Statement:

Our vision is a world where autoinflammatory conditions are recognized, understood, and treated effectively. We envision a world where patients, families and carers have access to the best care and support they need to live well and reach their full potential. We envision a world where our organisation is a trusted and respected leader in the field of autoinflammatory conditions, collaborating with partners and stakeholders to advance research, policy, and education. We envision a world where our organisations impact is evident and measurable, and where our core values of lived experience, policy influence, and awareness raising are embedded in everything we do.

Patient and Family support

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